Tuesday, May 31, 2011

Monday, May 30, 2011

Fawn-Doe-Rosa

We once again enjoyed a trip to Fawn-Doe-Rosa with the Amery Pre-School classes (I did not look at the bear in the small cage...that is something that really bothers me).
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I ordered some new toys for Calvin. His nice nap made for a productive therapy session and the opportunity to play with the new toys and explore his new Touch and Feel cards. I have my Resource Center/Toys page (tab above) updated with what I purchased for him. I was led by the toy guide at TeenyTinyHopkins' blog (a little girl with Ds who pulls at my heart strings).
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Wednesday, May 25, 2011

10 Months Old!

I feel so much love for my now 10 month old!
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He had his heart repair just 6 months ago. Oh, the places he's gone! Photobucket
This boy wants to move. He wants to play with EVERYTHING! He wants to hold our hands and play games.

He laughs when he's tickled, when his ears are cleaned (well, his left one anyways!), when Nolan twirls his exersaucer around and around, and when I make goofy faces. Photobucket
He has a personality! Imagine my joy and delight! One year ago I was amidst the most heart wrenching and suspenseful week of my life.Photobucket
God places us in just the life we need. Not the life we plan. I often think of what I'd be missing if I were in charge.

I have lots to share...in due time.

Wednesday, May 18, 2011

giggles worth

I cannot believe how supportive you all are! Well, actually I can. And, I have a thank-you (I have 2 but am having trouble uploading one...)



When I get the other one figured out then I'll share that, too. But before that, I have something else to share as well!

Sunday, May 15, 2011

Calvin update

It has been quite a while since I posted about Calvin and how he is doing. Along with that comes my feelings and how I'm doing with Calvin. Overall things are drastically different than 12 months ago. It was last May 12th that the ultrasound showed Calvin's heart defect. I followed up with the cardiologist on May 20th when I had an amnio, and found out Calvin has Down syndrome on May 27th. One year.
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It is unbelievable at times. I look through books and see pictures and remember how hard it was to "see" Down syndrome, or to read those words or hear things such as "low muscle tone, mental retardation".

I know I have almost completely healed. Calvin is so amazing, how could I not?
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Calvin continues to have weekly Occupational Therapy. I am struggling with some inner guilt, high level feelings of responsibility, and even some frustration in regards to his physical and verbal development.

Sometimes it is hard to be the one who carries around the to-do list: Set up hearing eval follow-up, play with him, time for therapy, provide more stimulation, feed him, love him...you get the idea.

It is different than it was with Evan and Nolan. There was a general assumption those two would learn.

Evan could pic out a giraffe in a pile of toys when he was 9 months old. He could find the purple ball and sign 'more' right around the same time. He's a smart kid. He was HIGH needs, but smart. Nolan; he could make the best motor noise with his little lips at the age of 4 months old. He was also on his hands and knees at that age. He is physically sound, we'll say.

Now, take your typical mom worries and add on Down syndrome. This is not a "poor me" session. It is reality; my reality. I find myself getting defensive to those out there that minimize it. Why am I feeling as though someone is minimizing it? I guess there are still feelings to work on. I take responsibility for that as well. Heck, I'll take responsibility for all that is mine.

I need to end this and get to my book: "Early Communication Skills for Children with Down Syndrome". Don't get me wrong, it's not a bad book AND I should just be grateful I have a book to help. But sometimes I find myself whining inside "I don't want to read a school book, I don't want to learn these things, I just want to live life and feel free of this burden". So, God, I'm turning this one over to You. Afterall, I just want to love Calvin; not feel such a sense of frustration and guilt and responsibility.
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Saturday, May 14, 2011

If you follow my blog...

Please make sure I follow yours if you have one! Leave a comment if you do not see your blog listed on the list...

Friday, May 13, 2011

fun fun fun

We had a really good day last Wednesday. Unfortunately this is a re-post due to some Blogger issue and I don't really remember all I had written...

So, I'll leave you with pictures from our day. Thank you for reading :)Photobucket
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Calvin and Cousin Adam
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Oh no, not another sand eater!
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Don't worry, Joe always catches them...