I am actually in bed before 9 and I'm at the hospital. I should say "Calvin is actually in bed before 9". I do not think I have the energy to explain all the details. I am very wiped out and have another head ache (I do not hardly ever get them).
I thought Calvin had an excellent day yesterday and was hopeful today we'd be home and I'd be in my own bed. Wrong!
Boy oh boy though. I was in the shower here and thinking about this journey. I realize I am a critical person and I was determined to stay thinking about the positives.
I have met some wonderful people, for one. People with their own great, yet challenging journeys. One ER nurse told me about losing her daughter just 4 months ago. One week before she was born. Another nurse shared with me that she has a child with Down syndrome. A 14 year old who has many challenges including being non-verbal and still needing diapers.
Did that scare me? Not at all. If that is what happens, it happens. Sure I want to communicate with Calvin and see him live a fairly easy life. Yep, I admit it will potentially, in my self-centered mind, make my life easier as well. But either way, I'd still love him and I know I would learn great things. Just like the ER nurse who said she has learned more from her daughter than anything else.
We may be here a while. Yes, this presents great challenges and commands strength. I am trying hard to stay positive. And going to sleep will help. Another update tomorrow perhaps.