- Down syndrome Pregnancy.org a wonderful, free, online guide to many resources and information. I have even posted a bit on there about Calvin's OHS and nursing.
- Down Syndrome: For Parents (Downsyn.com)
- Down Syndrome - Baby Center
- Down Syndrome Pregnancy - Baby Center
- Founder of the Baby Center sites posted this on her blog: My Favorite Post For New Moms...
Personal/Blog post Information and Experience:
- What is Down syndrome?
- Complete Atrial Ventricular Canal Defect (CAVC)
- CAVC surgery:
- Visit the blog posts during November of 2010
- Supplements, take 2
- Supplements, take 3
Books I own/borrowed and recommend (I have a ways to go here):
- Babies with Down Syndrome: A New Parents' Guide by Susan J. Skallerup
- The Down Syndrome Nutrition Handbook: A Guide to Promoting Healthy Lifestyles by Joan Guthrie Medlen
- Expecting Adam by Dr. Martha Beck
- Gifts and Gifts 2 by Kathryn Lynard Soper
- The Year My Son and I Were Born by Kathryn Lynard Soper
- Roadmap to Holland by Jennifer Graf Groneberg
- Gross Motor Skills in Children with Down Syndrome by Patricia C. Winders
- Down Syndrome: What You CAN Do by Qadohshyah Fish
- Early Communication Skills for Children With Down Syndrome by Libby Kumin
- We'll Paint the Octopus Red by Stephanie Stuve-Bodeen: This book was given to us by my friend Amanda and just so happened to be the day Calvin was born. I read it to the boys that day and teared up while doing so. Little did we know! I was/am disappointed that one of the genetic counselors we worked with did not have any recommendations of children's books I could get to read to the boys. Well, they are out there! I will soon post more.
From my experience and what I have read most others say, your child will play with the same toys his or her typical peer would play with, maybe just a little later AND a little longer (which allows more use out of toys). It is also a good idea to get toys that respond to your baby as it will encourage them to keep playing with them. Work with your child's therapist for advice on mid-line (in infancy primarily) and what to be focusing on when. Therapy based toys tend to be pretty expensive. Check with your Early Intervention program as they may have toys to loan as well. The following links are ones I have bookmarked which address play/toys:
- A list from Teeny Tiny Hopkins' blog: Lucy's Toy Guide
- My First Touch and Feel Picture Cards
- Early Years Turn-N-Tumble Rainstick
What does Down syndrome 'look' like?
- Visit Verity's tutorial here
- Interestingly, people with Down syndrome have similar physical characteristics. However, they are much more than the way they look:
When you look at me -
What do you see?
When you look into my eyes
Do you see beautiful blue,
sparkling with joy, delight
in my accomplishments
Or do you see that "almond shape"
or "brushfield spots"?
When you look at my hands
Do you see them reaching
for toys, writing the alphabet,
throwing a ball, doing a
Or do you see a "simian crease"?
When you look at my face
Do you see the resemblance
to my parents, that I have just had
my hair permed
Or do you see a "flat face" or
When you look at my behavior
Do you see my feelings of
pleasure and anger, my desire
to achieve, my frustration in
being treated like a baby
Or do you see the "stubbornness"?
When you look at my development
Do you see me playing with peers,
participating in sports, growing
into a productive adult
Or do you see "low muscle tone" or
"the eternal child"?
When you look at my family
Do you see loving parents wanting
to challenge me to my ultimate potential,
sisters and brothers who have a better
understanding of the differences in us all?
Or do you see a family torn apart by my
difference, constantly in crisis, unable
to accept, never to feel the joy of
having a "normal child"?
What Do You See?
Look At Me.
See Me For Me.
Written by :
Mary Ellen Graham
Founder of the DSAGC.
*I am in the process of creating this link. Feel free to explore, just remember it is not complete. Simply click on the phrase to go to a new link. It is likely I will be linking up my own posts. Also, if you have anything to add, just leave a comment. Feedback will be appreciated, so I know if this is doing any service or not. Also, there are many things I do not know about I could/would add.